Last night Theo did not look so good - his breathing was laboured and he was very puffy, skin all dry and pasty. Blood samples are regularly taken to culture and a fungus has been found, basically a yeast infection in his blood which is causing a fever and upsetting his lungs on top of the generalised problems. However, this is being treated and when I spoke with one of his consultants this morning I was told that the initial results from the Levosemindan were promising but that the infection was masking any other effects and so as soon as the infection passes they will resume the administration of this medicine.
Also, he looks loads better again this morning. Less puffy, breathing regular and not nearly as rapid. Due to have a transfusion this morning which will no doubt improve his colour too. The alert Theo we photographed last week has gone into a sort of hibernation again as he is dealing with these new challenges but I hope we see some more of him soon.
There was a suggestion that he may need an operation to seal the pleural cavity if the chyle leakage does not improve as he cannot receive intravenous nutrition forever at this age but the consultant wants to see if the medicine really works first as surgery is also undesirable.
Willow
9 comments:
Hi Willow and Colin, poor Theo, he must be getting fed up with all this messing about. He really is living up to his name, keep fighting little one. Thinking of all of you and sending our love Julie, Alan and the motley crew xxxx
Sorry to hear that Theo is still having a tough time allthough it sounds like you get the best of help. We are amazed what a big fighter Theo is!
Don´t forget that lots of people are still keeping fingers crossed for him in England, the US and Sweden.
Lots of love from the Swedish part of the Parker clan.
ps. baby Emma agrees with Theo that dummies are great!
Hey Colin, Hey Willow,
I keep thinking of calling you, but I figure you've enough on. So inagine I called, then I get credit for calling and you don't have to explain everything to me over the phone, works perfectly. The updates on Theo are great. I hope the rest of you are doing ok. Must be very long days at the moment. Take care
Phil n Vicky
Fingers, toes and eyes crossed for the new medicine. Think of you all everyday. I know there isn't anything anyone can do, but you know where we are if you need us.
Lots of love The Muddles. xxxx
Hi Willow and Colin,
We have read lots about what's happening and are sending loads of positive thoughts your way.
I (Howard) am working in our Paediatric Unit at the moment and I know that Theo's docs will be pulling out all the stops to help him.
Love,
Mary and Howard
Hi Willow and Colin, thinking of you all. Keep fighting Theo.
Love Sarah Stone
Thinking of you every day.
Deep peace of the running wave to you; deep peace of the flowing air to you; deep peace of the quiet earth to you; deep peace of the shining stars to you; deep peace of the Son of Peace to you.
Celtic blessing
Take care of each other the doctors sound like they are doing everything for Theo.
Catherine, Paul & Isabel
Dear Willow and Colin,
I have just returned from holiday and heard the news about little Theo. It was such a shock. My thoughts are with you all. Please let me know if there is anything I can practically do to support. Tabitha and Sacha, I am thinking of you too. You must be so worried about your brother. Theo is such a beautiful baby. I wish him every ounce of strength to overcome all that he is going through. Having read the blog, I am just amazed what a fight he is putting up. Sending love and strength Ros Henshaw
Glad to hear that the drug is having a good effect and Theo is more awake.
This blog is such a good idea. Thank you for letting us all know how things are going.
Keep fighting, Theo, we are thinking of you and wishing you a great deal of strength to carry on.
Take care
Love to all the family
Ellie, Richard, Fiona and Rob
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