Theo started the weekend ok but had an eventful Saturday as
an x-ray revealed his air in his pleural cavity (not good) and upon inspection his chest drain was found hanging out so it had to be replaced. This could have been the reason why his chest has not leaked for a few days but since it was replaced there has been only minimal fluid loss, hurrah!High Five!!!
Nurse Debbie relieved after all the drama
He also has had a temperature so all of his drip lines are now replaced in new sites, including a horrible one in his shoulder underneath his collar bone. He has been re-dosed up with a different antibiotic and was pretty out of it Saturday afternoon thanks to the ketamine. I had a cuddle, as he was freezing having been exposed for hours having all these treatments done and he was not warming up properly. His nurse, Debbie insisted my body heat would be the best way. And it was.
Sunday has been lovely as he seemed happier and we played a bit with some rattles and Daddy had a long cuddle so
Theo fell asleep only to wake up as we left. I cried then because I really did not want to leave when he was enjoying having me stroke his head, he was all dozy and cute. This is the dilema of having other children who also need love and attention at home.He is retaining fluid around his chin and neck again but it is less worrying at the moment as everything else is stable.
This is an x-ray of Theo and his stent is shown diagonally. You can also see how his heart is enlarged on the right.We managed to get a quick snap of Theo while Debbie was changing his face tapes - I can't believe how different he is.
this was erroneously labelled as the stent x-ray. it actually shows his lower jaw and all his tooth buds.We want to say hello and thank you to all the professionals out there who are reading this and are not allowed professionally to leave a comment.
And also to everyone who knows us and is looking and not leaving a comment simply because you have decided not to.
For whatever reason.
8 comments:
Hi Willow & Colin
As much as it must have been heart breaking to hear little Theo cry when you left - I would like to hope it is a sign of his incredibly strong bond with you both. Thinking and "Blog-visiting" a couple of times a day at least! Masses are still being said every day in Edinburgh. Please look after yourselves and how I wish I could help out with Tabitha if only we were not 400plus miles away!
much love
Tina xxx
Theo / Colin / Willow,
So chuffed for you all that the operation went well, sitting here shedding a tear for you all on a busy train on way into London.
If you would like me to have Tabitha on Sat or Sun, I am sure I can manage something, will have the kids with me (11yrs, 4yrs, 2yrs) for her to play with if that will take her mind off things.
Thinking of you guys every day.
Love Lee and Family.
hi- me again! what lovely photos! he looks so so different! thinking of you.
charlotte x
So pleased lovely little Theo's operation went well. Love and cuddles from mummy and daddy is the best medicine of all.
Remember that I am at home Monday and Fridays if I can help out with Tabitha.
Lots of love,
Jayne
You don't know me, I'm a friend of Poppys but she let me know of little Theo's fight and I've been checking up on him since then. Hope he continues to fight and I've been praying for you all.
Heather
He's beautiful!
Still thinking of you. Much love,
Lou xx
Hi Colin and Willow,
Still thinking of you all and wishing you continued strength to deal with Theo's illness. You are so brave and thank you for sharing all the news with us.
Keep strong.
Love
Ellie, Richard, Fiona and Rob.
Hi,
I can´t imagine what you have to go through every day, but everytime when I read how is little Theo I have tears in my eyes.
Don´t give up!!!
Alena - Lisa Jones´s friend (in Spain)
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