Believe it or not but it is exactly one year, to the day, that Theo was admitted as an emergency to the PICU at Glenfield. I took a short visit back into the unit and was overwhelmed by unpleasant memories..yet also very happy moments.
Today happened to be his 3 monthly review at the clinic with his saviour Dr Duke. I took great pleasure in thanking Dr Duke for our year with Theo - it is thanks to his (and the other doctors') amazing expertise and innovative treatment that we still have our littlest boy. So despite the horrible experiences of the last 12 months, we are grateful for so many things.
Dr Duke has agreed that Theo is well enough to have an operation for a gastrostomy; this will mean creating a portal directly into his stomach for us to give feeds and medicine. It will allow us to feed him without the uncomfortable NG tube up his nose and perhaps will allow him to develop some eating skills.
Secondly, we are no longer anxious to hear from Great Ormond Street hospital; the urgency is reducing and although this means yet more shifting sand beneath our feet as we struggle to comprehend life ahead, it can only be a good thing. An amazing, awesome thing. Dr Duke took full credit - said it was his stent that had done it.
We are also incredibly grateful to all the kind and patient people who have entered our lives to support our family, while we have been insulated by Theo's illness.
So the future of Theo's treatment now looks like this; to reduce, bit by bit, the ventilatory support and the medicines until he reaches a minimum. There is no way of knowing how far he will get or how long it will take.
Here's to the future!!
4 comments:
i cant believe its a year ago already. you said from the start that theo was a fighter and you were right.
well done theo!
lets hope theo continues to make such good progress and carry on with his great recovery.
loadsa love katie x x x x
Congratulations on your engagement, the year is getting better and better, photos are great love julie alan and clan xxxxxxxxxx
Theo we need you to keep on fighting, we know you can, get well soon. Thinking of you Colin and Willow, keep strong,he is a real fighter and this is just another down in the roller coaster,love Julie, Alan and Clan xxxxx
Congrats.Much better years ahead.Good luck for Theo on weaning off the ventilator and reducing the medication.Full recovery.Keep the spirit high.You can make it, Theo.pray for you always.
we'll never give up.
Lots of love
Hellen-Samuel's mom XXXXX
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