Thing the Drs never told Us
1. cardiomyopathy is not a death sentence.
2. your EF is just a number, it doesnt tell you how long you have to live.
3. you are probably gonna sleep all day after a big day.
4. your probably going to like your room cold at nite.
5. that skip in your heart that keeps driving you crazy everytime you feel it, there called PVCs and they wont hurt you, just anoy you.
6. you may find sleeping on one side makes you feel worse.
7. if your heart is enlarged then you may feel the weight from it now and then.
8. it does suck when you know your sick, but to others you look fine and they just dont get it.
9. if you have an AICD they arent that bad. yes if you get shocked it hurts, but its over so fast and your still alive.
10. when they say an LVAD or transplant is your only option, keep looking, there is more out there.
11. when they tell you that you have only so long to live, remember there not God.
12. women...hormones cause PVCs so if its that time, you may feel worse then normal.
AND most of all remember you have cardiomyopathy. cardiomyopathy DOESN'T have you.